Authors (including presenting author) :
TING WCJ(1), TSE WL(1), MAK CKM(1), YU WPF(2), WONG KW(2), CHAU WW(2), CHOW KHS(2), HO PC(1)
Affiliation :
(1)Department of Orthopaedics and Traumatology, Prince of Wales Hospital, (2)Department of Orthopaedics and Traumatology, Chinese University of Hong Kong
Introduction :
Children born with congenital upper limb anomalies (CULA) may have very mild to extremely significant physical, functional and psychosocial deficits. To date, there has been no documentation system to track, quantify or understand the impact of these patients in Hong Kong. Our team secured Health and Medical Research Fund (HMRF) in 2020 for a period of 3 years to set up a CULA registry at our hospital and we here present our preliminary findings.
Objectives :
To present up-to-date data on patients presenting to CULA clinic at Prince of Wales Hospital based on prospective and retrospective review of medical records dating back to 1984.
Methodology :
Their anomalies were classified according to Oberg, Manske, and Tonkin (OMT), International Federation of Societies for Surgery of the Hand (IFSSH), and Japanese Society for Surgery of the Hand (JSSH) classifications.
Result & Outcome :
Result:
Based on the 1528 records entered as of December 2021, median age at first presentation was 1.33 years. 902 (59.0%) patients were male and 626 (41.0%) females. 124 (8.2%) patients had more than one upper limb abnormalities. 23 % of patients had anomalies of other areas including lower limb (10.9%), cardiovascular system (3.1%) and craniofacial region (4.5%). In terms of physical localities, 68.2% of patients resided in New Territories while over 30% were from other clusters. This reflected our quaternary referral service nature. 7.3% reported family history. 53.8% had surgical treatment. The most common condition was duplicated thumb (31.9%) followed by trigger thumb (9.15%), chromosomal/generalized skeletal abnormalities (7.1%), clasped thumb (5.6%) and clinodactyly (5.4%).
Discussion and conclusion:
We present an early report on the first CULA registry in Hong Kong. This registry serves as an important platform for planning on health resource allocation to provide optimal care for CULA patients as the registry grows. Resources permitting, the registry should be expanded to cover more patients in other hospitals in Hong Kong.
This study is supported by HMRF (ref. no. 17180061)
